Albinism in Your Skin

This one is especially for my friends in the Albinism community.  I think we can all agree that – while the blonde hair is a blessing – the translucent skin is a curse!  Especially when you have redness on top of that.

Covering up the redness with tan – do love this gúna though! It’s from Vanilla Boutique in Fermoy 

I’m not sure about the rest of you, but I purposely keep my arms (in particular) covered.  The problem with translucent skin is that redness shows constantly – I know for me, it means my arms end up looking like someone has slapped me, and the rest of my skin is deathly white! I’m so conscious of it, and the only way I’ve covered it before is with a spray tan.  But constant spray tanning isn’t pracitical – or financially healthy!

So a few weeks ago, a friend gave me some bottles of a new skincare range that she’s been using recently – a range called Ocean Bloom.  Usually, I won’t try a new range even when I do get a recommendation – my skin is so sensitive and the smallest thing can set me off with a rash or reaction.  But I must admit, when I checked out the ingredients on their website, I was impressed.  Their moisturiser has an SPF – super important for someone with albinism because of our lack of pigment.  No parabens, no nasty sulphates or silicones – and all organic ingredients.  They don’t test on animals either.

It’s great that the Ocean Bloom range isn’t tested on animals – I also just think this pic is super cute!

So I thought “I’ll give this a go!”.

I started out with the moisturiser and eye serum.  Of course, I patch tested both first, and no reaction so I was ready to go.  Woohoo!

Within a week, there was a clear difference in the redness of my face, something I’ve always had trouble with and something I put down to my albinism.  The red pigment and hue in my face started to fade – not entirely – but noticeably enough.  I’ve been doing a bit of Google’ing, and seaweed (the main ingredient) reduces skin redness, inflammation, and is a natural way to hydrate skin.  So maybe this explains it?  All I know is the redness is going slowly, and I’m super happy about that!

Some pics I took of the moisturiser, just for an idea of the consistency

Similarly with the eye serum, the dark circles around my eyes are gone way down too!  Again, these circles are something I used to put down the strain on my eyes by everyday tasks – I’m sure you all know how difficult it can be to work around nystagmus.  I felt it was my nystagmus made these circles worse – there’s a lot of pressure on my eyes day to day.  So obviously I’m super happy with this too.  It’s nice and soft around my eyes too – again, I’m so careful with what goes near them because it’s important to keep them as healthy as possible.

When these results were so good after just a week, I started using some of their other products – the main ingredient in the range is seaweed from West Cork.  So it MUST be good for the rest of my skin, right?

Remember what I said about the redness in my face being reduced with the moisturiser?  Well, the body butter had the EXACT same effect! I can only presume its because of the way seaweed reduces redness?  Or maybe its because something soothing is on my skin.  Whatever the reason, it basically means I don’t have to keep my arms constantly hidden if I have no tan on!  R-E-S-U-L-T!!

I’m always the first one to share any good products I find – especially when it comes to something that helps with the lesser effects of my albinism.  Trust me when I say this really helped the redness on my face, that I think is mostly down to my albinism.   The same with the redness on my arms and parts of my legs.  It hasn’t disappeared, but there’s a huuuuuge reduction in it.  Hopefully as I keep using it, it’ll continue to reduce it.  I’ve noticed that my skin is a lot healthier in general since I started using the moisturiser and body butter.

My favourite delivery of ALL time!!!! How cute is the packaging?

I’ve included links in this post if any of you want to have a look at Ocean Bloom’s online store, you can.  If you guys end up trying these products too, please message me and let me know!  I think it’ll be really beneficial for people like me with albinism who suffer from the same type of redness.

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Summer Sun

As some of you know, I was on a long overdue sun holiday last week – rakes of emails, tweets and Instagram posts have been totally ignored.  While I was posting pictures here and there, I did my best to just sit back, relax, and enjoy a little disconnection from the madness for a week.

Chilling by the pool while on holidays in Puerto Del Carmen, Lanzarote
Chilling by the pool while on holidays in Puerto Del Carmen, Lanzarote

Right away, I know a lot of you are probably thinking “sun holiday, wouldn’t that be a nightmare for someone with albinism?”.  And in the past I would definitely have agreed.  If you ask my parents, there wasn’t one family holiday I went on in the past where I didn’t get some form of sunburn.  It always seemed that no matter how many times I got into the pool with a t-shirt on or lathered myself in Factor 50 suncream I would always end up roasted and as red as a lobster!  Nearly every holiday – even the Staycations we had here in Ireland – I always got a burn, and bad one at that.


Obviously, I had learned how sore the burns could be and as a (somewhat) mature 24 year-old, I decided I would do everything in my power not to get roasted this time – but I was determined to do it in style.  From my experience, people can often overlook the psychological effect something like this can have.  For me, anytime I’m out in the sun and there are all these tanned people soaking up the sun, it just serves as a reminder that “I’m different – I can’t do this”.  And so, being careful in the sun in style is a diversion tactic of mine.

Myself, my dad Sean, and my brother Evan on the beach on one of the cloudier days
Myself, my dad Sean, and my brother Evan on the beach on one of the cloudier days

First things first – a spray tan was my first port of call before heading off.  The thinking behind this was twofold; I’ll look tanned when I get there so I’ll fit in, and also there is an SPF in the spray tan my local salon uses so it’ll protect my skin too.  Of course, I’m not silly enough to think that this SPF will keep me completely protected…. And so I bought a bottle of Sally Hansen fake tan and a brand new tanning mitt to pack into my suitcase.  After a little research, I figured that because I would be applying ‘Sally’ a few times a day, the SPF 20 in it would act in a similar way suncream does when you reapply it.  So there, I was sorted – I could wear my bikinis, sun hat and sun dresses without looking pasty and – lets face it – standing out.


I forgot to pack the tan and mitt!!!!!


So I’m sitting by the pool wearing a dressing gown on the first day because my plan fell apart – and I had refused to pack any ‘just in case’ sunscreen so I was in double trouble!!  Luckily, I kept entirely covered by either shade or light clothes while at the pool that day, and also had the wherewithal to take a few (completely staged!!) bikini photos.  Later that night, I was on the search for fake tan – which is hilarious considering I was on holidays in Lanzarote.  It even got to the stage where I was Googling ‘where can I buy Sally Hansen in Puerto Del Carmen?’.


As it was getting to the stage where I was resigning myself to having to lather pasty white sunscreen on myself I found what is probably the best sunscreen I’ve used.  AND it has fake tan in it!!  I HIT THE JACKPOT!!

This is the sunscreen I found - a good SPF and a bronzer!
This is the sunscreen I found – a good SPF and a bronzer!

The sunscreen I bought and used for the rest of the holiday is the Australian Gold sunscreen with a built in bronzer.  Happy days – I was protected from the sun AND i was a little tanned looking too.  I used this religiously for the rest of my holiday, and I didn’t have one burn.  Not one – which is a first for me!  As soon as I got home – sun burn free – I knew I had to let everyone else know about this little discovery I made.  For me, its about convenience and ease of use – this sunscreen helped me to ‘fit in’ with a little bronzing and it wasn’t sticky or pasty on my skin.  Everyone was a winner!


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Pale Skin Beauty by Guest Blogger Holly Barry

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Holly Barry is a fashion, lifestyle and beauty blogger and columnist with Hi Magazine, someone i would definitely describe as a style expert.  We met recently, through the Cork Rose Selection process.  I even remember her first style tip to me – “You’re hair is perfect, if you want to keep it for tomorrow then sleep with a scarf tied around it”.  Sure enough, she was right!  I’ve asked Holly to do a guest piece on pale skin beauty, as it is a question I get again and again!  So have a read below – and visit the Along Came Holly website and Facebook page for more!

Holly & I at a Cork Rose event
Holly & I at a Cork Rose event

When it comes to pale skin there is always the fear that makeup will either look too dark or completely wash you out. I am a believer that your makeup routine should change according to the season. In winter I always find that my makeup tends to be a little heavier but in the summer I always go back to a light, natural look. This is especially important for us pale skinned girls (when we are not covered in tan!), so embrace your skin tone and give this makeup look a go.

It all starts with the base, firstly start with a strong SPF. Year round I always wear an SPF on my face. Although this is important for everyone I would recommend a strong SPF for us pale girls. Vichy has a great range of these and even has an SPF 60. Although this may seem high, at a minimum I would wear 50 during the summer. We have to keep our skin looking young and those dreaded wrinkles as far down the line as possible! On top of that I would start with a base. For the summer I always switch to a BB Cream. It is much lighter and gives you that dewy, sun kissed look. I have tried many and find the best for pale skin is the Garnier BB Cream. Thankfully they understand that pale skin requires extremely pale makeup! This one offers great coverage without looking cakey. Then to set that put a layer of Rimmel Stay Matte powder, to make sure it stays put for the day.

The Naked Flushed palette will be your best friend! This can be used for so many things which makes it a great product to invest in. Here you have your contour powder which can be used to extenuate your cheek bones, a blush and a highlighting powder to give you that summer glow. Not only this but you can use the contour powder in the crease of your eyelid and the highlighter under your brow bone, on your eyelid, on the inside corner of your eye at the tear duct and on your cupids bow. Naked Flushed is a no brainer!

With the summer heat, okay maybe not always in Ireland but maybe on your holidays, waterproof mascara is a necessity. There are so many great ones available; one that I always go back to is Maybelline Waterproof Great Lash.

Then onto the finishing touches. To keep those brows in place Maybelline Brow Drama ensures that there are no fly aways. And lastly, a small layer of Vaseline rose on your lips to give them a hint of colour with a glossy finish.

Holly's recommendations for pale skin beauty
Holly’s recommendations for pale skin beauty

Make sure to give this look a go and if you do tag me on Instagram or Twitter @Along_CameHolly.

I would love to see your finished makeup look!

Holly x

Take a look at Along Came Holly for more info
Take a look at Along Came Holly for more info